Thursday, April 29, 2010
April 29th MRI results are not good at all
First a little disclaimer about this post...We were given this news almost 4 months ago (at the time of this post) and Tyler has grown to amaze the doctors that gave him this prognosis. He is 3 months old now and doing everything a 'normal' 3 month old should. He is currently not showing any signs of the injury the MRI showed. The human brain is a pretty amazing thing and because Tyler's brain was pretty much a clean slate when the injury occurred, it seems he has been able to 'rewire' things to the healthy parts of his brain and this has allowed him to develop normally to this point. There is no answer to what the future will hold for him, all we can do right now is be amazed and thankful for the progress he's made so far and hope and pray it continues. He has had many different follow up appointments and everyone that has seen him agrees there is no sign of any concern at this point. If nothing else, it has just made us appreciate the little things... and it's made us very aware of what a little miracle baby he really is. That said, here's how that day went... We had been dealing with Dr. Little for our entire stay up to this point and he was always so warm , friendly, and pleasant. We knew the instant we saw the troubled look on his face that the meeting he was about to call us into would bring bad news. We did understand that there was a chance of brain damage but were so hopeful that the 3 days on the cooling blankets had prevented any damage at all. We were by no means prepared for the results that were given to us that day. I believe the words that started off the meeting were 'we do not believe Tyler is going to die'... that certainly set the tone for the rest of the meeting. The MRI scan showed that Tyler's brain suffered a severe injury. The doctors used words like severe, profound, and devastating when describing the extent of the damage. Looking back through his medical records now, the doctors describe it as a loss of 'nearly the entire left hemisphere and patchy areas of the right'. In literally minutes, we went from wondering if there was going to be any brain damage at all to hoping that his brain would have the capacity enough to regulate his body temperature, allow him to breathe, or eat without a feeding tube. The doctors were painfully honest with us which we very much appreciated. They described what they felt would be a very poor prognosis for Tyler. We had several doctors, nurses, and social workers with us for this meeting and I don't think there was a dry eye in the room. Even Dr. Little who is a seasoned neonatoligist seemed shaken by the news he was delivering. Our only hope at the close of the meeting came from the fact that a newborn's brain is extremely resilient and capable of some pretty amazing 'rewiring'. The MRI scan showed the injury that his brain sustained but only Tyler is going to be able to show us what that means for him. I remember leaving the room thinking I'd slap someone if I heard the words 'time will tell' one more time. Tim, my Mom, Gram, and myself went back to be with Tyler and cried for what seemed like hours. We all kept saying 'how can anything be wrong with something so beautiful'. It was truly the hardest day any of us have ever been through but the love and support from the friends and family we spoke to on that day made us realize that no matter what, we were going to get through this.
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